12/09/06

UKCRN has launched its first online GCP course.

The course aims to provide an up-to-date and comprehensive guide to the principles of ICH GoodClinical Practice (GCP), and the EU Directive for Clinical Trials and it will help participants understand the historical development of Good Clinical Practice and its impact on clinical research.

The course is split into two modules and each is stand-alone. The course can be completed in any order and learning material is underpinned by using scenarios from the workplace. Participants are encouraged to consider how the principles could be applied to their own work situation with quizzes and challenges used to identify knowledge gaps. Participants can complete the course at their own pace within three months of registering.

For more information, and to register on the course, visit the UKCRN website at http://www.ukcrn.org.uk/index/training/courses/gcp_online.html

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19/05/06 Yorkshire Cancer Research Network User Partnership Group (YCRN UPG)

The YCRN UPG are holding an event on the 7th October at Bar Convent in York where they will give more information about how service users can influence cancer research in the Yorkshire Cancer Network. This is a free event and will include lunch.

You can book a place on-line here

or contact Carol Sleigh on tel: 0113 2067631 or by email: carol.sleigh@leedsth.nhs.uk

There is also a poster available for download here

Please feel free to use this poster and spread the word!

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02/02/06 YCRN Research Questionnaire results available!

For more information and access to the exclusive download click here.

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25/01/06 New Standard Operating Procedures (SOP's) Page added!

A new page has been added to the site and a new button created on the site menu (last button in the information section).

This new page will act as a central repository for all Standard Operating Procedures (SOP's) that you may find of use.

After a great deal of network feedback it has been deemed that the YCRN Discussion Forums are to be discontinued, the forums are still available for the foreseeable future here.

12/12/05

NETWORK 35 - December edition

The monthly electronic newsletter of the NCRN available here

25/11/05

LTHT MHRA Inspection

We have been notified that the Medicines and Healthcare Products Regulatory Agency (MHRA) will be inspecting the Leeds Teaching Hospitals NHS Trust (LTHT) between January - March 2006.

Notes for completion of the Clinical Trial activity list can be downloaded here

28/10/05

Research and Me goes live 28/10/05!

[click logo to access researchandme.org.uk]

This new website has been developed from an idea by the YCRN Research User Group, which is a group of service users and health care professionals who have been meeting regularly to consider ways that patients, carers and members of the public can become involved in influencing clinical research.

The website is supported by the Yorkshire Cancer Research Network and staff involved in the project are happy for you to contact them regarding any ideas, suggestions or information you might want about this new exciting development.

Carol Sleigh - Clinical Trials Coordinator [Upper GI, Urology], Yorkshire Cancer Research Network

For all technical enquiries, please contact:

Kieran Delahunt - IT Officer, Yorkshire Cancer Research Network

14/10/05

Treatments involving cyclophosphamide

Baxter Healthcare has alerted the Medical Research Council of some manufacturing issues
which may lead to a shortage of intravenous cyclophophamide. Baxter is working to implement
a number of interim and long term measures to overcome the issue and reduce the impact
of the problem. They are notifying the medical community to enable them to develop
contingency plans.

Full letter and helpline number from Baxter Healthcare is available here

14/10/05

The YCRN Annual Report 2004-2005 is now available. [Download]
(to download files Right Click & choose Save Target As)

Can NCRN Staff Speed Up the Reporting and Publication of the TACT Trial

A poster displayed at the NCRI Conference in Birmingham (2nd - 5th Oct) explains how
the TACT Trials Unit may be able to speed up the time to analysis it can get "real time"
data, reporting events as they happen, as an adjunct to the current system which captures
data annually. The very nature of the current method of annual reporting means that events
may not be reported to the Trials Office for up to 11 months after occurrence, assuming that
all forms are completed promptly at annual intervals. A mapping exercise was conducted to
identify the number of overdue follow up forms. Follow up is deemed to be overdue if no follow
up form is received for 15 months or more in the Trials Office. Currently 20% of forms are
overdue across all centres (although the range is from 90% to 0% outstanding). The Trials Unit
were able to identify by Centre and by Network the percentage rate and actual number of
overdue forms. The data relating to Networks is shown on the poster in tabular form. The aim
of this exercise was not to name and shame, or to apportion blame, but simply to highlight
where the delays and blockages are occurring.

*****In the analysis the Yorkshire Cancer Research Network was amongst the top for the quality and timeliness of it's data returns. There is a special mention for both Huddersfield and St James's Hopsitals for a 100% data returns*****

You can download or view the poster here



*****NEW STUDY******
The role of diet, complementary treatment and lifestyle in breast cancer survival.
A study of phytoestrogens in breast cancer progression

A new NCRN adopted study investigating the role of diet, complementary treatment and
lifestyle in breast cancer survival is now open to additonal centres in the UK. The study requires 3,000 breast cancer patients, grade I-III, one year post-op and is co-ordinated by Against Breast Cancer Research Group at University College London. Patients are approached 1 year after diagnosis a blood and urine test are taken. Several questionnaires are given to the patient to complete at home. This is repeated annually for a further 4 years.

Download the Protocol here



30/09/05

The third edition of BEACAN (the BrEAst Cancer reseArch Newsletter) is available here!

For all feedback, suggestions and contributions, please contact ramila.patel@leedsth.nhs.uk

If you need any further information, or a full protocol then please contact ramila.patel@leedsth.nhs.uk.



11/05/05

Third edition of HORN available here!

Focus on CML Abstract, which is referred to in the newsletter is available here

For all feedback, suggestions and contributions, please contact sharon.woolley@leedsth.nhs.uk



09/05/05

The second edition of BEACAN (the BrEAst Cancer reseArch Newsletter) is available here!

For all feedback, suggestions and contributions, please contact ramila.patel@leedsth.nhs.uk

There are a number of new breast cancer clinical trials in the NCRN portfolio.

Brief details of these new trials can be found by following this link.

If you need any further information, or a full protocol then please contact ramila.patel@leedsth.nhs.uk.



29/04/05

Advertisement for membership to the Oncology Pharmacy and Chemotherapy
Standardisation Committee and Panel.

This advertisement is particularly aimed at pharmacists and research and oncology nurses,
although applications from oncologists are also welcome.

Download the advertisement [here]



08/02/05

The first edition of BEACAN (the BrEAst Cancer reseArch Newsletter) available here!

Aims of BEACAN:

To provide information about existing and new breast cancer clinical trials.

To provide a platform for information transfer between different recruiting centres and
researchers in the Network.

To discuss a new ‘scientific hot topic’ every issue to raise awareness of current research in
breast cancer.


14/12/04

A new YCRN Information Leaflet has been produced - get it here!


08/12/04

New edition of HORN available here!

HORN is a quarterly newsletter for all those within the field of Haematology Oncology Research
within Yorkshire.

Why have a newsletter?

To keep up to date with current events.
To act as a forum for new ideas.
To be updated on trial recruitment within the network.
To access feedback from study days.
To disseminate information on up coming study events.
To have a point of contact for any queries concerning clinical trials.

HORN issue 1 available here

17/09/04

NEEDED - Nursing Members for the National Cancer Research Institute Clinical Studies Group

The 21 National Cancer Research Institute (NCRI) Clinical Studies Groups have a remit to
develop portfolios of trials for specific cancer types or treatment approaches. This includes
overseeing the portfolio of existing studies, considering new research questions, developing
proposals and securing funding from NCRI members. The Groups are multi-disciplinary, with
surgery, medical oncology, clinical oncology, radiology, pathology, epidemiology, statistics and
other professions involved in clinical trials represented on each Group as appropriate. For a full
list of the 21 Groups and their members please visit the web site at
http://www.ncrn.org.uk/csg/index.htm

Each Group meets at least twice a year and many of the Groups host National Clinical Trials
meetings of between 100 and 450 delegates. Appointments are for three years in the first
instance, and Membership can be considered as national work.

Nurses are currently under represented on the Clinical Studies Groups and we are currently
seeking applications from practicing nurses to join one of the following Groups.

• Breast
• Bladder
• Gynaecological
• Palliative Care
• Primary Care
• Psychosocial Oncology

Further details can be downloaded here


22/07/04

The YCRN Annual Report 2003-2004 is now available. [Download]
(to download files Right Click & choose Save Target As)

06/05/04

The YCRN Discussion Forums have now been launched! The first forum to go live is the Upper GI
Discussion Forum. We're hoping the forums will be heavily used and encourage discussion and
collaboration between research staff throughout the network and perhaps beyond...

To be able to use the forums you will need a unique Username & Password. There is a full
training pack that can be downloaded which includes lots of helpful tips and an official form to
be returned - this will ensure that you get a forum account.

If you have any further questions please e-mail Leigh Oates, IT Manager.

Here's the training pack and separate cover! [Training Pack] [Cover]
(to download files Right Click & choose Save Target As)


06/02/04

Cancer Research UK update on the draft legislation for the EU Directive 2001/20/EC

Download [Document]

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